35歲圓“讀書”夢
（吉隆坡）他從小到大的夢想是進入學校唸書，這個一般人眼中可輕易達成的事，他卻要在35歲之后才能完成！
發高燒患小兒痳痺症
因為他出世3個月時發了一場高燒，患上小兒痳痺症，家中長輩覺得這是一件羞恥的事，怕太多人知道，於是不讓他上學。
所以他小時候看到弟弟妹妹們去上學時，心里很羨慕，立志要去學校唸書。
直到35歲左右，他終於有機進入小學了，不過並不是做學生，而是當圖書館管理員。
他是張楨健，如果不是小時候他向弟弟“請教”，自己肯用心摸索，現在他可能會是文盲。
能閱讀簡單華文書籍
來自哥打白沙羅的楨健說，他現在能閱讀簡單的華文書籍和掌握普通的馬來文和英文詞匯，這是他這些年來努力自修的成果。
他說，他很喜歡目前的工作，這份工作圓了他想進學校唸書的夢想。
楨健目前在甲洞二校任職圖書館管理員。他感謝校方和學生在工作上給以的協助，並希望能長久在此工作。
楨健的情況是，左手和右腳可以活動，但是右手和左腳無力。
婆婆勸媽媽放棄
楨建險成棄嬰
提起往事，楨健相當感慨。他說，這事令他自小就不喜歡婆婆。
“媽媽告訴我，當我被證實患上小兒痳痺症後，婆婆曾勸媽媽放棄我，把我留在醫院，不要帶回家。”
“可是媽媽沒有狠下心腸，她告訴婆婆，我始終是她的骨肉，她不能就此拋棄我。”
他說，當時父親需到外工作，而母親是割膠工人，清晨就需到膠園工作，婆婆因為他是殘障兒，而聲明不照顧他。
從沒埋怨過父母
楨健說，因為父母的堅持，他才不至於成為孤兒。所以他從沒埋怨過父母，不過卻無法原諒婆婆，自小就很少和婆婆講話。”
除了險成棄嬰之事，另一件影響楨健至今，造成最大傷害的事是沒有讓楨健上學。
“因為我姐姐也患小兒痳痺症，她是在出世4個月大時得此病，不過她的情況好一些，她還可以走路。婆婆說，家里已經有一人殘障，上學時被人指指點點，不想我再去上學再讓人嘲弄。”
楨健說，家里除了他和姐姐殘障之外，其他弟妹都健全。
弟弟教導及自修
楨健能識字閱讀
“我15歲那年，弟弟開始唸小學，他第一天上學時，我看到他的校服很漂亮，心里很羨慕，很希望自己有機會穿上。”
“那天我等到弟弟放學回來，我向他借校服穿上，以滿足自己，但是我非常清楚一切都是假象。”
“我每天等弟弟回來，要他教我唸書認字，我是在這樣環境下長大和慢慢識字。”
楨健說，除了通過弟弟的教導，他的識字能力是通過電視節目逐慚一點點累積。
他說，他現在能夠識字和閱讀，但是書寫的能力還很弱。
他說，那時他都是看華文書，所以他不會馬來文和英文，另外，他也只是學會認字，可是完全不會寫。
華文能力只有中學程度
楨健說，現在他的華文能力只到中學程度，文字較深的書籍，他看不懂。
“初在圖書館任職，當閱讀中學程度書本時，我一行文字中有好多字不會，經過3年的努力自修，一行文字我已經可以讀出來，只是迅速比較慢。”
圖書館的工作讓楨健有更多機會與書為伍，彌補自小無法唸書的遺憾，也滿足他的求知慾。
從本身事件中，楨健體會到殘障人更需要學習機會，同時也希望社會人士多給殘障人士工作機會。他相信只要有機會，殘障人會比正常人更珍惜學習和工作的機會。
最喜歡歷史書籍
盼考取證書文憑
楨健說，他是在11年前才從家鄉來吉隆坡尋找工作，那時他是想到父母已老，有朝一日他要自己獨立生活，為了自己未來著想，他才只身出外找工作。
這些年來，他做過幾份工，包括在電子廠工作和在報社發行部工作。
楨健說，在來甲洞二校工作之前，他也在八打靈再也培才小學擔任過圖書館管理員，只是那裡的圖書館在樓上，他行動不便，所以只做18個月就離職。
“當初聽說可以在圖書館工作時，我好開心，因為終於可以完成進入校園的夢想了。”
楨健最喜歡閱讀歷史書籍，他希望可以在這方面考取一張證書或文憑。
“可是我不知道如何去尋找這方面的資料。”
他希望有人可以提供這方面的資料。
楨健已婚，妻子是名教師，倆人是在美門殘障中心認識。妻子也是他的老師，他閱讀時遇到難題，就會向妻子請教。
真情人物
姓名：張楨健
年齡：39歲
家境：已婚。
遭遇：小時因一場高燒而患上小兒痳痺症，長輩們覺得是件羞恥的事，不讓他上學，導致他沒有機會上學唸書，只靠弟弟教導及自修。他卅多歲成為小學圖書館管理員，完成進入校園的夢想。 （星洲日報／大都會‧2007.05.14）
摘自：http://www.sinchew-i.com/article.phtml?artid=200705140368&data=scnews&spid=34715
Tuesday, May 15, 2007
Sunday, May 13, 2007
Using the law to help the disabled
RAMPS have been put up for the disabled in major shopping complexes, but some are too narrow to accommodate a wheelchair.
If you take TV programmes, only news segments are being sign-translated for the deaf, while tactile flooring to help guide the blind to safety is only provided on selected urban streets.
In short, the disabled are still made to be largely dependent on others to survive, let alone lead a "normal" life.
"Without (proper) facilities, getting out of the house is not only unfriendly but downright dangerous for the disabled," said Anthony Thanasayan, spokesperson for the Malaysians Against the Discrimination of the Disabled.
He admitted there have been more efforts in recent years to have disabled-friendly facilities, "but they’ve been largely sporadic and centred in Kuala Lumpur".
"A comprehensive plan is needed to provide facilities to help us be independent and productive members of the community."
Meanwhile, parents like Darshini Ganeson are worried that their children cannot get the proper training to become independent individuals because of the lack of "well-run" vocational institutions for the disabled.
She dismisses the special public schools for the disabled, saying they are of no help.
"If I had left Nanthini in her public school, she’d be a vegetable by now. They lump the children together — the autistic with the Down’s syndrome and the dyspraxic, like my girl.
"They must realise that each has different learning capabilities," said Darshini.
Malaysia has long been a signatory of the Convention on the Rights of the Child (CRC) — the most widely ratified human rights treaty in history.
Its article 23 upholds that children with disabilities be guaranteed "a full and decent life, in conditions which ensure dignity, promote self-reliance and facilitate the child’s active participation".
Earlier this year, a new treaty to ensure the human rights of people with disabilities opened for signature at the United Nations General Assembly.
The new treaty, which strengthens CRC’s Article 23, further advocates the human rights of an estimated 650 million disabled people in the world.
As of March 30, some 80 countries have signed the new Convention on the Rights of Persons with Disabilities.
Malaysia is not on the list of signatories but the Women, Family and Community Development Minister Datuk Seri Shahrizat Abdul Jalil said "we are working towards it".
"We want to have our groundwork in place first. Our legal advisers are working 24/7 to finalise the Persons with Disabilities Bill to be tabled in Parliament this year. Once we have that in place, we will sign the convention."
Presently, Malaysia has 170,000 registered disabled people. To facilitate the disabled, especially the poor, a new directive was issued last month for special counters for the disabled to be set up in every district welfare office.
"Just go and speak to my officers and they will help you," said Shahrizat.
Source : http://www.nst.com.my/Current_News/NST/Sunday/Focus/20070513085558/Article/index_html
If you take TV programmes, only news segments are being sign-translated for the deaf, while tactile flooring to help guide the blind to safety is only provided on selected urban streets.
In short, the disabled are still made to be largely dependent on others to survive, let alone lead a "normal" life.
"Without (proper) facilities, getting out of the house is not only unfriendly but downright dangerous for the disabled," said Anthony Thanasayan, spokesperson for the Malaysians Against the Discrimination of the Disabled.
He admitted there have been more efforts in recent years to have disabled-friendly facilities, "but they’ve been largely sporadic and centred in Kuala Lumpur".
"A comprehensive plan is needed to provide facilities to help us be independent and productive members of the community."
Meanwhile, parents like Darshini Ganeson are worried that their children cannot get the proper training to become independent individuals because of the lack of "well-run" vocational institutions for the disabled.
She dismisses the special public schools for the disabled, saying they are of no help.
"If I had left Nanthini in her public school, she’d be a vegetable by now. They lump the children together — the autistic with the Down’s syndrome and the dyspraxic, like my girl.
"They must realise that each has different learning capabilities," said Darshini.
Malaysia has long been a signatory of the Convention on the Rights of the Child (CRC) — the most widely ratified human rights treaty in history.
Its article 23 upholds that children with disabilities be guaranteed "a full and decent life, in conditions which ensure dignity, promote self-reliance and facilitate the child’s active participation".
Earlier this year, a new treaty to ensure the human rights of people with disabilities opened for signature at the United Nations General Assembly.
The new treaty, which strengthens CRC’s Article 23, further advocates the human rights of an estimated 650 million disabled people in the world.
As of March 30, some 80 countries have signed the new Convention on the Rights of Persons with Disabilities.
Malaysia is not on the list of signatories but the Women, Family and Community Development Minister Datuk Seri Shahrizat Abdul Jalil said "we are working towards it".
"We want to have our groundwork in place first. Our legal advisers are working 24/7 to finalise the Persons with Disabilities Bill to be tabled in Parliament this year. Once we have that in place, we will sign the convention."
Presently, Malaysia has 170,000 registered disabled people. To facilitate the disabled, especially the poor, a new directive was issued last month for special counters for the disabled to be set up in every district welfare office.
"Just go and speak to my officers and they will help you," said Shahrizat.
Source : http://www.nst.com.my/Current_News/NST/Sunday/Focus/20070513085558/Article/index_html
Mum’s love knows no bounds
By LEE YUK PENG
PETALING JAYA: Love is not ever feeling sorry.
Life had given Tey Hong Eng, 66, and daughter Sia Siew Chin, 41, more downs than ups, but for every heartache, headache and backache they suffer, they always see a sunbeam shining through.
And being wheelchair-bound has not stopped the two gutsy women from continuing to inspire and motivate others about seeing the best in people.
Great inspirations: Tey and Sia with little Pui Yarn.
For years, Tey worked as a domestic help and, when she returned home, would bring piles of clothes to wash to earn some extra income.
In between chores, she would cook for her seven children, prepare them for school and attend to their every need.
More challenging for her was that five of her children suffer from muscular dystrophy - a disorder characterised by degenerating or abnormal muscle development.
In 1999, when she was with Sia, who was having a difficult delivery in Kuala Lumpur, they heard that a fire had gutted their wooden home in Sungai Rambai, Malacca.
In that same year, Tey was diagnosed with a spinal problem and needed to go for an operation.
Despite being wheelchair bound since her surgery in 2000, Tey said she has a better life now.
Sia, who inherited her mother’s guts and courageous nature, beamed as she talked about her only daughter – for whom she risked her life to give birth.
Due to her muscular dystrophy, doctors advised her to get an abortion. She, however, took the risk and baby Ng Pui Yarn was born.
“Pui Yarn is a God-sent gift. I have no right to take her life away,” said Sia, who was fully aware that the child had a 50% risk of inheriting the genetic problem from her.
Now, Pui Yarn has been diagnosed to have similar signs like her.
“Being a mother has made me feel complete and proud,” said Sia, who now champions the cause of the disabled as executive director of the Beautiful Gate Foundation for the Disabled.
Sia will be receiving a special Mother’s Day award from the Kiwanis Club of Taman Tun Dr Ismail here on May 20.
Pui Yarn, who grew up with many disabled around her, used to tell Sia: “I hate to be like you.”
However, Sia has repeatedly told her young daughter that being wheelchair-bound would not make her life unhappy. “You can still do a lot of things” she told Pui Yarn.
The young girl, inspired and motivated by her mum, made a Mother’s Day card for Sia, complete with a drawing of a woman in a wheelchair
Source : http://thestar.com.my/news/story.asp?file=/2007/5/13/nation/17704988&sec=nation
PETALING JAYA: Love is not ever feeling sorry.
Life had given Tey Hong Eng, 66, and daughter Sia Siew Chin, 41, more downs than ups, but for every heartache, headache and backache they suffer, they always see a sunbeam shining through.
And being wheelchair-bound has not stopped the two gutsy women from continuing to inspire and motivate others about seeing the best in people.
Great inspirations: Tey and Sia with little Pui Yarn.
For years, Tey worked as a domestic help and, when she returned home, would bring piles of clothes to wash to earn some extra income.
In between chores, she would cook for her seven children, prepare them for school and attend to their every need.
More challenging for her was that five of her children suffer from muscular dystrophy - a disorder characterised by degenerating or abnormal muscle development.
In 1999, when she was with Sia, who was having a difficult delivery in Kuala Lumpur, they heard that a fire had gutted their wooden home in Sungai Rambai, Malacca.
In that same year, Tey was diagnosed with a spinal problem and needed to go for an operation.
Despite being wheelchair bound since her surgery in 2000, Tey said she has a better life now.
Sia, who inherited her mother’s guts and courageous nature, beamed as she talked about her only daughter – for whom she risked her life to give birth.
Due to her muscular dystrophy, doctors advised her to get an abortion. She, however, took the risk and baby Ng Pui Yarn was born.
“Pui Yarn is a God-sent gift. I have no right to take her life away,” said Sia, who was fully aware that the child had a 50% risk of inheriting the genetic problem from her.
Now, Pui Yarn has been diagnosed to have similar signs like her.
“Being a mother has made me feel complete and proud,” said Sia, who now champions the cause of the disabled as executive director of the Beautiful Gate Foundation for the Disabled.
Sia will be receiving a special Mother’s Day award from the Kiwanis Club of Taman Tun Dr Ismail here on May 20.
Pui Yarn, who grew up with many disabled around her, used to tell Sia: “I hate to be like you.”
However, Sia has repeatedly told her young daughter that being wheelchair-bound would not make her life unhappy. “You can still do a lot of things” she told Pui Yarn.
The young girl, inspired and motivated by her mum, made a Mother’s Day card for Sia, complete with a drawing of a woman in a wheelchair
Source : http://thestar.com.my/news/story.asp?file=/2007/5/13/nation/17704988&sec=nation
Sunday, May 6, 2007
阳光天使生活营 2007．留言版
Tan Lee Teng
很快的又来到Sem Break，我回到家，哥哥约我来参加这个营会。本来想在家休息，妈妈却说难得有这个机会，不如就去看看吧！
起初我看到残障人士有点怕，不知道要怎样跟他们沟通，可是在与他们接触的三天里头，我已经不再怕他们了。他们让我体会到他们比我们健全的人来得更坚强、开朗和勇气。从今以后，我会好好地珍惜现在所拥有的一切，要用真心去对待每一位人。
Jade
要好好向残障朋友们学习，不要随便放弃，要努力、积极、乐观及勇敢！！！Nothing is impossible.
陈宏灏
恭喜你勇敢地冒了这次险，成功突破了你自己，踏出你的舒适区，再次把自己奉献给需要帮助的残障朋友。你也通过这两天半的活动，从残障朋友身上，学到生活的意志力，坚强的生命力，和无条件的真爱。
郭惠祥
一个人走在黑暗中是孤独？或是害怕？是悲伤？或是放弃？阳光是世界的灯，照亮世人的心，就像天使的拥抱，付出我们的爱心，永恒的爱心，让爱创造这新的世界。哭着来世界，微笑面对人生。
刘晶玫
体验，需要投入一股真诚的心，才能领悟当中的感受。所以凡事投入，就能有所得。
卢建兵
开心、感动、每一滴泪，每一滴汗，都是值得去做，去付出的！无怨无悔！感谢万莉，让我临时帮忙这营会，不然我也不知道这个营会的意义那么大，如果可以，我还是会再参加的 =)
张秀琴
感谢！感谢！常怀感恩的心才能学会珍惜身边的一切一切。谦卑才能学到更多；行动、用心才能体会人生，产生智慧。
淑芳
加油！加油！坚持下去，你可以做到的！不可能是想出来的，可能是做出来的!
很快的又来到Sem Break，我回到家，哥哥约我来参加这个营会。本来想在家休息，妈妈却说难得有这个机会，不如就去看看吧！
起初我看到残障人士有点怕，不知道要怎样跟他们沟通，可是在与他们接触的三天里头，我已经不再怕他们了。他们让我体会到他们比我们健全的人来得更坚强、开朗和勇气。从今以后，我会好好地珍惜现在所拥有的一切，要用真心去对待每一位人。
Jade
要好好向残障朋友们学习，不要随便放弃，要努力、积极、乐观及勇敢！！！Nothing is impossible.
陈宏灏
恭喜你勇敢地冒了这次险，成功突破了你自己，踏出你的舒适区，再次把自己奉献给需要帮助的残障朋友。你也通过这两天半的活动，从残障朋友身上，学到生活的意志力，坚强的生命力，和无条件的真爱。
郭惠祥
一个人走在黑暗中是孤独？或是害怕？是悲伤？或是放弃？阳光是世界的灯，照亮世人的心，就像天使的拥抱，付出我们的爱心，永恒的爱心，让爱创造这新的世界。哭着来世界，微笑面对人生。
刘晶玫
体验，需要投入一股真诚的心，才能领悟当中的感受。所以凡事投入，就能有所得。
卢建兵
开心、感动、每一滴泪，每一滴汗，都是值得去做，去付出的！无怨无悔！感谢万莉，让我临时帮忙这营会，不然我也不知道这个营会的意义那么大，如果可以，我还是会再参加的 =)
张秀琴
感谢！感谢！常怀感恩的心才能学会珍惜身边的一切一切。谦卑才能学到更多；行动、用心才能体会人生，产生智慧。
淑芳
加油！加油！坚持下去，你可以做到的！不可能是想出来的，可能是做出来的!
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